The National Association Sos Lymphedema onlus (now E.T.S) was established in 2007 among their family patients, some specialist doctors in the sector and some lymphotherapists. It arises from the need to spread knowledge of the disease not only among patients but above all among doctors, therapists and health care representatives in general. The association has for years been accredited and registered on the portal of the Ministry of Health (recently the association has adapted its statute to the law on the third sector and above all to the Ministerial Decree of 2 August 2017 by the Ministry of Health regarding the requirements for being registered on the portal as scientific technical associations), at the National Center for Rare Diseases at the National Institute of Health, at Orphanet. It has its own Scientific Committee which summarizes the branch specialists with well-known clinical experience. It has greatly contributed to raising the awareness of the competent ministerial and institutional bodies in the approval of the Guidelines on Lymphedema (15 September 2016 State / Regions Conference) and to the D.P.C.M 12 January 2017 – updating and reorganization of the L.E.A. Thousands of copies of the volume “Living and participating with lymphedema” have been produced and distributed extensively at an institutional and health level, which contains a didactic description of the pathology, rules, decrees and loose laws on lymphedema, a volume that can be downloaded free of charge by those in need from website www.soslinfedema.it
. In addition to co-organizing congresses, seminars and conferences on the subject, the association has activated specific actions on the regional territory with awareness days organized ad hoc in various regions. A live TV and international streaming program is active weekly on Medical Excellence TV, a multimedia platform dedicated to health and through which several webinars on lymphedema were broadcast in the pandemic period with the participation of the most acclaimed specialists on the subject. The need to launch the 1st National Conference on Lymphedema arose directly during the LIMPHADAY 2021 celebrated live by our association on Medical Excellence TV on 6 March. It stands out as the only multimedia event aimed above all at patients, healthcare professionals, family and hospital doctors, members of the l 104 and 62 commissions, coroners and lawyers specializing in the specific branch, the varied world of training, a basic element for correct and appropriate management of the rehabilitation of lymphedemics, in a sector where currently the absence of regulations and controls means that the patient does not always have to take advantage of the most suitable and effective treatments. The algorithm that will govern the Conference unraveling between Research, Development and Evolution. All operators who in any capacity animate the knowledge of Lymphedema in a scientific and preparatory key will be involved. The Conference will be divided into round tables that will be interactive with the remote audience via video questions to get as much involvement as possible.
1st NATIONAL CONFERENCE ON LYMPHEDEMA PROGRAM
FLORIDIA (SR) MEDICAL EXCELLENCE TV PRODUCTION STUDIES
SS.192 FLORIDIA – SYRACUSE Km 110
25 JUNE
9.00 AM, PRESENTATION, INTRODUCTION AND START OF WORK.
CONFERENCE PRESIDENCY SETTLEMENT, PROF. MARIO ADELFIO LATTERI, PROF. GASPARE GULOTTA, PROF. RAUL MATTASSI WHO WILL CARRY OUT THE SCIENTIFIC INTRODUCTION TO THE ROUND TABLES:
9.30-10.15 THE DIAGNOSIS FROM CLINIC TO IMAGING: ULTRASOUND, LYMPHOSCINTIGRAPHY, LYMPHANGIORISONANCE, LYMPHFLUOROSCOPY, UTILITY, NEEDS AND INDICATIONS.
10.15-11.00 MONONUCLEAR CELLS IN THE LYMPHEDEMA: THE NEW FRONTIERS OF RESEARCH. 30 + 15 ‘
11.00-12.00 THE ROLE OF COMPANIES IN THE CHRONIC MANAGEMENT OF THE LYMPHEDEMA: BANDAGES, TUTORS, DEVICES, ELECTROMEDICAL, DRUGS, SUPPLEMENTS. SEARCH AND UPDATES.
ACCLAMATION PLATE “MASSIMO FAVINI” SESSION 2021-2022
12.00-12.45 THE CENTRAL ROLE OF THE CERTIFIERS OF THE PRIMARY CHRONIC LYMPHEDEMA IN THE OUTLET
IN CHARGE: SKILLS, TRAINING, APPROPRIATION, 30 + 15 ‘
12.45-13.45 LUNCH BREAK
14.00-14.45 THERAPIES INSIDE A REHABILITATION PROJECT 30 + 15 ‘
14.45-16.00 LYMPHEDEMA IN LEGISLATION: CRITICALITIES IN THERAPEUTIC COVERAGE- WELFARE AND SOCIAL SECURITY OF THE LYMPHEDEMA. MINISTERIAL GUIDELINES AND INPS GUIDELINES ALREADY FORMULATED BUT NOT YET RECEIVED AND EVEN IMPLEMENTED BY THE COMMISSIONS.
THE NEED TO UNIFORM THE DIAGNOSTIC-THERAPEUTIC PATHS AND THE LEGAL COVERAGE OF THE PRIMARY AND SECONDARY LYMPHEDEMA. 45 + 15
16.00-16.45 SECONDARY LYMPHEDEMA AND ONCOLOGY: THE PARADOX OF THE FUNCTIONAL SYNAPSIS MISSING BETWEEN ONCOLOGIST AND LYMPHOLOGIST FOR THE PATIENT WITH SECONDARY LYMPHEDEMA.
THE NEED TO PREVENT AND TAKE ACTION IMMEDIATELY.
17:00 AMBULATORS EX ART. 26 A CONCRETE SUPPORT OF THE REGIONAL NETWORK
17:15 QUESTION TIME
26 JUNE SATURDAY
09:30 1030 LYMPHEDEMA AND LIPEDEMA: A CHANGE OF PARADIGM ACCORDING TO THE EUROPEAN CONSENSUS DOCUMENT OF 2020. 45 + 15 60
10.30-11.30 COMPARING INSTITUTIONS FOR THE LYMPHEDEMA 45 + 15
11.30-12.15 TRAINING AND ACQUISITION OF SKILLS FOR NETWORK DEVELOPMENT REGIONAL LYMPHOLOGY ACCORDING TO A MULTIDISCIPLINARY AND MULTIPROFESSIONAL APPROACH AS INDICATED BY INTERNATIONAL GUIDELINES AND MINISTERIAL GUIDELINES FOR LYMPHEDEMA.
12.15-13.00 FROM GENETICS TO EXPERIMENTAL PHARMACOLOGY
LUNCH BREAK
14.00-14.15 THE ROLE OF ITALIAN SCIENTIFIC FLEBOLYMPHOLOGICAL SOCIETIES IN SUPPORT OF THE SICK WITH THE LYMPHEDEMA
14.20 – 15.20 REGIONAL COORDINATIONS: REFERENCES IN COMPARISON.
15:30 DEBATE IN THE STUDIO
CLOSURE OF WORK
